Tuesday, May 28, 2013

Worst Week EVER!!! (warning long story)



Y'all last week was notably the worst week of my life..... no doubt. To fill you in I have to start back a week or two......

May 8th I started back to work (huge sigh and eye rolling inserted here). Madilyn did great!!! Both Wednesday and Thursday that week she was a different baby. Less clingy, happy, she even began liking hanging out with her daddy. However I noticed she had a runny nose when I picked her up that day. No biggy I just kept the Selene and the snot sucker close by. However that night she began coughing which concerned me. I decided to call the doctor that Friday since the weekend was approaching and I didn't want to have to take her to the weekend facilities.

Madilyn's pediatrician was out of the office until today actually :). So I had to visit another pediatrician in our area. Anyway he gave her antibiotics and wanted her back the following Tuesday for a check up. That Saturday after getting the antibiotics girl was a brand new baby!!!! Happy Happy Happy.

Tuesday we went for her check up and she was clear as far as what ailed her the previous Friday. However the pediatrician that was not our own ordered an upper GI to confirm our pediatrician's hunch that Madilyn had acid reflux. (She was already on Zantac for it, I think this guy wanted to take her off).  Anyhow we went the next day for the GI. The radiologist simply said "no reflux" and walked out.

Ok now fast forward to the worst day of my life!!!! The following Monday May 20th, I get a phone call from the pediatrician that ordered the GI. They said that Madilyn had a "malrotation of her lower bowel" and it could be potentially serious. Well of coarse the first thing I do is google it. I know  know I shouldn't have but I was confused and just wanted to know what we were dealing with. It isn't the worst thing your child can be diagnosed with but would most likely require surgery and there is a small risk of fatality. Any risk is too much risk and this momma cried all day and all night!!!

They scheduled us for an appointment in Birmingham with a pediatric gastroenterologist the next morning (Tuesday morning) at 9:30. To make a long story a little less long, I will skip some details and say the specialist sent us to have another upper GI and lower bowel follow through done at children's hospital. After being there a good three hours they said Madilyn did not have the Malrotation but indeed have acid reflux. We were sent home with all new meds (which have now given me a whole new set of worries)......

I was so relieved to find out it wasn't as bad as we had thought. However my relief was short lived. Thursday evening I receive a phone call that my maternal grandmother had passed away. She was found in her house by my Aunt. They suspect she had a heart attack sometime that morning. So needless to say our weekend was filled with funeral homes, tears and funeral services.

On top of all this Madilyn's new meds appear to be making things worse. I am now confused and at a loss. I am her mother I am supposed to be able to fix it but I feel like I am just making things worse. Pray for me folks because I am on the edge of insanity.....

2 comments:

  1. We are having the same reflux issue with Kate. We've tried Zantac and it didn't help so now we r on Prevacid. I've changed to Dr. Brown bottles too. The combination seems to help a wee bit but she still spits up. Dr. C says she will grow out of it. I hope they get Madilyn's fixed soon. It is so frustrating. Btw she's such a pretty baby :)
    Ashley Kinder

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  2. Ashley,

    We were on zantac and he has switched to pilosec (sp?) which is supposed to be almost the same as previcid. It has made her much much worse. Now they are wanting us to add bethanechol which terrifies me. I hate the thought of druging gher up if she seemed to do fine with the Zantac...... so stressful

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